The Ties That Bind: Coping with Loss and Moving Forward

Yesterday was unexpectedly hard for me. In a way, I was not aware of, until my special guy pointed it out to me. Yesterday, I resigned from my part-time job. I resigned because I am ready to focus my energy on something that I am incredibly passionate about: advocacy in the veteran space.

The unexpected sadness that resigning brought, I now understand, thanks to Grant, has more to do with this being another tie that is being cut from my life with Tom. I started working for this company just after Tom was diagnosed. Just a year before, I had transitioned from being an independent environmental consultant to working at a firm. Working for myself was an incredible experience, but I knew that to grow as a professional, I needed to work in a setting that would allow that growth. In the three years I spent at the consulting firm, I learned and grew as a regulatory consultant and project manager and had incredible industry mentors. I loved what I did.

When it was determined that Tom needed a trach, my professional life came to a grinding halt. I had to give up a career I didn’t just love but one I worked very hard to establish myself and my reputation. I had to pass along my clients to others in my office. Clients that I was proud to have.

Tom shared in my professional success. He had a front row seat in it. He was, without a doubt, my greatest supporter and cheerleader. He was also my therapist when I was worried about a project and how I should handle things. He would always remind me that whatever happened, we had each other. Having an emotional safety net allowed me to “go for the brass ring” as my Dad would say. Tom wrapped me in love and support, and that gave me the strength to go for my dreams and not focus on the “what-ifs” of failing. Because of that love and support, I started my own environmental consulting company and later a separate solid waste training company specializing in medical waste management and used by the waste industry in Texas.

After Tom died, I had no idea what I would do moving forward. I got a call from the office asking me back. Not as an environmental consultant, as that department had gone away after Covid, but to come back to help part-time in the office as needed. Going back to work was strange after years of caregiving, but I looked forward to being back with my work family. A family that I could be myself and talk about Tom, and they would get it. Returning to work allowed me to be vertical and get out of bed. Going back to that office was the soft landing I needed after losing my amazing husband. I will forever be grateful for the company and those working in the Austin office.

It wasn’t until yesterday evening that it hit me. Leaving the company I started when Tom was alive was one more step forward in a life that no longer had Tom in it. One more tie, one more connection broken of something Tom and I shared. Last night, as I cried, I thought about how many more ties or connections that I shared with Tom would break in the future. How many more? At what point will my life have very few ties to Tom? That is a scary thought! As I move forward, I will gain new memories and create new ties or connections with those moving forward with me.

Yes, yesterday was heartbreaking. Sometimes, these things hit when we least expect them. I woke up this morning with sadness still in my heart. Like with every part of this widow journey, I have learned I must feel the feels and understand the what and the why until I can accept it and continue to move forward. It is sad that the ties that wrapped Tom and I together as a couple are breaking, but I understand it must happen to make room for new ones. It just hurts when they break and float way.

Do me a favor, if your person is with you, hug them tight and enjoy the ties that bind you in your relationship. If you are in this widow lane with me, I hope you find new ties to bind you to the people in your life that you love and love you.

All my love,

Lara

Remodel or Teardown?

house renovation
Photo by Rene Asmussen on Pexels.com

This past year I have been remodeling the house to take it from fully accessible to more aging in place with my style added. Well, not really style but vibe. That is how I have styled my home, with a peaceful, calm vibe. It was needed after years of living in the chaos that ALS brought to our lives and home. 

Like the house, I have been under construction but my changes required a full tear down approach. That is because there is nothing to remodel when you are shattered and broken. That is what Tom’s death did to me. My foundation was so shaken that I crumbled under the weight of the grief his death brought me. It took me months to realize that the repairs to my heart and soul would take a tear down and full rebuild to repair the damage the ALS journey and his death caused. This is what a terminal disease looks like for the family on the other side, the beyond. 

Building myself back up has taken time, but brick by brick it is happening. I credit all the things I have done to date to get me to this point. Taking time and allowing myself to feel every emotion, to fully grieve my husband was necessary. It was hard, man, was it hard, but I did it and continue to do it. Feeling all the emotions allowed me to fully tap into who I was as scary as that is and who I wanted to be.  The hot-tub mindfulness, meditation and yoga have allowed me to sit with myself, learn to love myself and be comfortable in the pain and in doing so I found my version of peace and happiness. I found talking with other widows/widowers helped as well in not just normalizing the crazy things I was feeling and thinking but confirming that these feelings and thoughts were not just mine but that others felt the same. It removed the isolation and loneliness that grieving can cause. All of the things I was doing  allowed me to see the world in a different way. To see that I could continue to build myself up so I can have a future I could possibly look forward to living.  That’s a big statement right there folks. When Tom first died, I couldn’t see a happy future for myself and to be honest, didn’t even want to think about being happy again. How could I find happiness when Tom was gone? As the intense grief subsided and I started to see myself healing, being happy again was something I thought was actually possible and yes, I did want it. 

I am finding in this grief journey, the more I let go, the more abundant my life becomes.  Letting go of the intense grief or the guilt surrounding me moving forward with my life and Tom dying. I am reconnecting with friends, making new friends, finding hobbies and activities I like and shocker, I have even begun dating. I wasn’t looking to date just yet, but what started out as connecting with an ALS widower to get through the 2nd year holidays has transitioned into a friendship and now companionship or as I have been saying, my special friend/friendship.  There is a deep level of understanding and mutual respect for what we went through and what we are going through as we navigate life moving forward. I don’t think I would even be able to allow myself to feel happy if I had not done the work and taken the time to rebuild myself into the person I am today. Am I fully restored? Nah, but my foundation is solid as is the framework of this new me. Just like the house remodel,  I am different. There is no way around that but like I talked about in a previous post, this version of me is more authentic. I am more confident in myself and what I want for my future and like the remodel, my vibe is so different than it was before Tom died. 

As the home remodel is coming to a close, I have wondered what Tom would think. Would he like the new look and new vibe of the house? The same goes for me, what would he think of this version of me? I think he would most definitely be proud of who I have become and the path I am on with my healing. He would be happy that I can now honestly say that I am finding happiness in this beyond life of mine. What would he think of the remodel, well he would most definitely tell me there are too many girly touches, but if it makes me happy, he is happy. 

So whether you are a teardown or a remodel, take the time to do the work, understand the journey and the effort and cost in rebuilding is worth every minute and every dime!

All my love,

Lara

Story Time-Our Wedding Day

The Big He and I get to celebrate our anniversary for two days. I know, you are asking yourself, how is that possible. Well, 31 years ago, we eloped on the island of Guam, which is a day ahead of the US. Guam was the Big He’s first Duty Station. We had planned for me to visit for the summer of 1990 and would marry later in the year. Well, as with any good love story between two very young kids, fate had us marry earlier than we thought.

A few days after my last college final in May 1990, I was on a plane to visit the Big He on the island of Guam. I had a return ticket for the first part of August. I would have two whole months, sixty consecutive days to be with him. By this point in our relationship we may have had a total of 45 days we were physically together and keep in mind they were not consecutive.  Let me just say, I had the best time with him on the island. I was, for the first time in my life, off on my own-okay I was with the Big He but it still counts. I was on a tropical island with the most gorgeous man AND he was in a uniform. Who knew I had a thing for smart-ass and uniforms. In mid-July, the Big He was preparing to go off island for an exercise. He would be gone for 30 days. We had only two choices for what I could do. I could go home early or stay. So, we got married July 30th, 1990 which was about one year after we went on our first date. I was twenty years old and he was twenty-one. I had no job and only 2 years of college under my belt. He was just an Airman First Class and on the day we married, he had negative $80 in the bank. He had bounced a check for a microwave of all things. Of course a bounced check could not stop love!

You would think finding out you were negative $80.00 would be the worst thing that could happen on your wedding day…it wasn’t. You ready? Here is the story…

We had arranged for two friends of the Big He to come with us to be witnesses and also because one of them had a vehicle to get us to the Justice of the Peace (JP). There was actually five people in the vehicle that went that day. At the JP’s office, we did have to wait a litte bit. In those minutes before our time to get hitched, my stomach was a ball of nerves. The Big He and I could barely look at each other. I knew I wanted to get married, but man was I scared. Standing in front of the JP and looking into the beautiful green eye’s of my future husband, the best I could mumble when asked if “I take him to be my…” was not “I do” but “Yea”. WTH??? Such a romantic and traditional way to express my desire to cheris this man for richer or poorer or in sickness and in health. The look on his face…he has yet to let me live that down.

After the ceremony, which there are zero pictures, we headed to McDonalds because everyone was hungry. Remember I said the Big He had bounced a check…yep no money to eat. After McDonalds we headed back to Base. On our way back, we were pulled over because the driver was speeding. After getting a ticket, we took off once again towards Base. About a mile down the road, we had blowout. Not a big deal until we realized there wasn’t a spare. The blowout occured on a back road to Base and in the middle of no-where. There was however a small house on the edge of the boonies or jungle line. I was voluntold to go knock on the door and ask to call the Law Enforcement Desk. Oh, hey, did I mention that all the people in the truck were cops but I was the one that was supposed to knock on a stranger’s door for help. One of our brave USAF LE’s did come with me and the LE Desk would be sending a patrol car to come get us and sending a tow truck as well.

As we waited in typical tropical island weather, we had on again, off again rain events. Y’all know I have naturally curly hair right? It does not do well in hot, rainy, humid weather. The tow truck was the first to arrive. My new husband and our friend Daryl, my man-of-honor, jumped in the truck and off they went to Base. Yes, if you are asking yourself, did she say new husband left with Daryl, that would be correct. I was left alone on the side of the road with two people, none of which were not my new husband! The two LE’s decided it was probably a good idea to start walking back to Base in hopes the patrol car would get to us soon. Yep, that didn’t work out very good. The patrol went out the wrong gate which took him around the island before he caught up with us…only a few miles from Base at this point.

Once back on Base, we were dropped off at the dorms, where my new husband was waiting for me, freshly showered and I swear he took a nap cause he look rested. Me on the other hand, had wild crazy curly hair, sweaty and my pretty white heals were worn flat from walking on the road which had a coral base to it. Once I freshened up, we went to have a wedding dinner at the NCO club…cause we had no money and he knew if he took me to the Mac T I would kill him. The only thing left that late in the evening was steak, potatoe and salad. They also had a few slices of cheesecake for dessert so that was our meal. One we have eaten every year since. Steak, potatoe, salad and cheesecake for dessert.

The day wasn’t picture perfect but that is not really what a marriage is about is it? It’s about the people. We actually laughed most of the day and night about what had transpired. The Big he and I have always found reason’s to laugh. We just love being with each other and truly enjoy each other’s company.

Since it is already July 30th in Guam, I am taking the opportunity to wish my beloved a Happy Anniversary. Love you more!

All my love,

The She

T is for Trust

Trust and Love

There are so many layers to caregiving. These layers include the relationship we have to the care recipient, the physical aspect of the care, and the emotional and mental impact that caregiving takes. The base of all these layers needs to be strong to support the heavy load that caregiving can bring. While early on in my caregiving life I would say without question, love was where the strength to our foundation came from, but now I think it is trust and love. Can you love someone without first trusting them? After the Big He was put on the ventilator I would tease him that I was his Boppy. That was the term we used for the Little He’s security blanket when he was a baby. This was because when the Big He would get anxious or scared, he would want me close. I was becoming his security blanket. He trusts me and knew if I was there I would protect him with everything I can. Even on days when I am not his favorite person, he still trusts me. He trusts me to ensure every aspect of his life runs smoothly. Heck, sometimes he trusts me so much he thinks I can read his mind. For this post, I wanted to start with the foundation for our caregiving journey. As I post throughout this month you will understand that even when an ugly layer of this journey is exposed, you see it for what it is, just a layer and it is in those moments we rely on our strong foundation.

All my love,

The She

How do I say…

I have tried so many times in the past six months to do a post, but every time I start to write, I delete, delete, delete. It has more to do with how best to paint the picture of living an ALS life to you. I have tried to be authentic. To articulate the daily struggle that ALS brings. As I write, I find how sad my words are and so I delete. I started this blog to share the journey but as the disease progresses and the journey gets harder so does my ability to show you behind the curtain. So I struggle with how to say things are hard, ugly and sometimes heartbreaking. Don’t get me wrong, it’s not hard all the time, but a good part of the time.

May is Month of the Military Caregiver and I am going to be better at sharing. If only for a month. So, my question is are you ready to hear the hard stuff?

All my love,

The She