
Ten years ago, I landed in Washington, DC for the first time and felt immediately overwhelmed. Lost. Small somehow.
It was spring break 2016. Tom, Trey, and I had come with one of my dearest friends and her family. They had treated us to the trip, something I don’t think I’ll ever forget. At the time, we hadn’t yet told Trey that his dad had ALS.
I didn’t know then that Washington, DC would become woven into the fabric of my life.
Over the years, I came back many times. Almost every trip tied in some way to ALS through the Elizabeth Dole Foundation, through I Am ALS. In a strange way, this disease brought me to this city, and despite the reason, I grew to love it.
But every version of DC carried a different emotional weight.
When Tom was sick, coming here meant fear. Fear that I was too far away from him. Fear that something would happen, and I wouldn’t get back in time. There is something terrifying about being a three-hour flight from the person whose life you are desperately trying to hold together.
Then came the trips after he died. Those carried a different heaviness. Sadness. The ache of experiencing things I could no longer share with him. I remember bringing Trey to an Elizabeth Dole Foundation event not long after Tom passed, and everywhere I looked there was this invisible reminder that Tom should have been there too.
Even as DC became familiar, it was never emotionally light.
Somewhere in the middle of all these trips, I came to Washington with Grant for the first time.
It was strange.
Up until then, DC had only existed in my mind as a place tied to Tom, to ALS, to advocacy, to grief. Every memory I had here traced back to that chapter of my life. So bringing another man, someone who represented a new love and a completely different season of my life felt emotionally complicated in ways I wasn’t fully prepared for.
But I was also excited.
Grant had never been to DC, and I found myself wanting to share it with him. We walked the monuments, explored the museums, laughed, ate good food. And slowly I realized something: DC no longer belonged only to my grief. For the first time, I was making memories here that weren’t rooted in fear or loss.
That may have been the beginning of seeing this city and honestly my life in a different light.
This trip, I landed in Washington almost four years after Tom passed away and ten years after that first spring break visit.
Something felt different.
Walking through the airport, I noticed the fear wasn’t there. The heaviness wasn’t there either. No anxiety. No sadness attached to the city itself.
Instead, I felt strong. Not strong in the fake “I survived it” way. Strong in a grounded way. Strong in who I am now.
I think my month across the Atlantic changed something in me. Crossing the ocean. Road-tripping through England and the Netherlands. Wandering through places I’d never seen. It was more than a vacation, it was growth. I stopped looking backward at my life as though all the best moments had already happened.
That realization is complicated because my life with Tom was beautiful. He was extraordinary. He was a loving husband, the most devoted father. Sometimes I still think nobody could have wanted to be a dad as much as Tom did. He loved us so completely.
And for a long time after losing him, I think part of me believed happiness belonged to my “before” life,
But standing in Washington this time, I just felt different.
I am happy.
Not pretending. Not surviving. Actually happy.
People who knew me during the ALS years still ask sometimes, with this softness behind the question: How are you doing? And lately, the words that come out of my mouth surprise even me.
I’m good.
And I mean it.
I’m doing work that doesn’t feel like work because helping caregivers, veterans, and families navigate impossible systems has become part of who I am.
I’ve opened myself up more. I laugh more. I feel lighter.
The exhausted, grief-stricken caregiver from 2016 through 2022 isn’t gone. But she isn’t leading anymore.
I will always grieve my husband. I will always miss him.
But grief is no longer the only thing living inside me.
Now there is joy too. Friendship. Purpose. Community. Strength.
There’s Trey, who has grown into such an incredible young man. Sometimes I look at him and think Tom would be so unbelievably proud of who we both became after everything we endured.
There are the people ALS brought into my life, this strange and beautiful family built through loss, advocacy, resilience, and love.
And yes, there is Grant.
There are blessings now I couldn’t see when I was buried under survival mode and heartbreak.
That doesn’t mean losing Tom was somehow “worth it.” I hate when grief gets wrapped in neat inspirational bows. If I could have had my old life back — Tom healthy and alive — I would have chosen it in a heartbeat.
But since life didn’t give us that option, I’m grateful for the strength that carried me through anyway.
Because there were moments I truly didn’t think I could survive this. Moments I didn’t want to survive it.
But had I not kept going, I never would have met this version of myself.
And honestly? I like her.
So to all my fellow widows walking through grief and wondering if they will ever feel whole again — I hope one day you look back and realize just how strong you became while carrying what felt impossible.
Today is a good day.











