While there is progression, the Big He is still walking (very short distances), talking (kinda getting that drunk ALS accent) but despite it all he is going strong.
I have had a draft going for a day now, I write and I delete. You know what, the biggest thing I can say about 2017 is WE SURVIVED YEAR 2 of the monster disease known as ALS! So again, ALS, you. can. suck. it!
We survived progression. We survived traveling with a disability. We survived reduced ability to walk and to breath. We survived the VA. We survived 2 surgeries, We survived figuring this new life despite wanting to scream and yell and hide from this new reality…ok, maybe thats more me then then the He’s. They survived me. I survived them.
Look out 2018, look out ALS, we are hitting our stride and will hit this new year and new life like survivors!
All my love,
The She