This weekend our family went to our very first Air Show. The purpose was for the big he and the little he to ride in a B25 Bomber-The Yellow Rose which is maintained by the Commerative Air Force in San Marcus, TX. What a beautiful plane! The boys have talked about doing this for several years. Those two are huge military history nerds. We just never found time, always something else to do like run errands or clean the house. This Alpha Lima Sierra has caused us to re-evaluate our lives and do those things, you know the memory makers, and not just say we want to do them. So, flying in a WWII bomber was placed on the family bucket list and we can now cross it off! We were able to ride the Yellow Rose at the Corsicana Air Show. It worked out great for us that it was in Corsicana as we not only got to do this but visit with my parents that live in the area.
The boys had the biggest smiles when they climbed down from the plane after their ride. We would not have done this if it were not for my very good friend and mentor here in Austin. We also traveled this weekend with family and that made our memories even more special. We stayed with my parents and got to visit, do some fishing and just relax at the lake. So to everyone that made this weekend special for us…Thank you, Thank you, Thank you. We are making memories that I know will get all of us though some difficult times.
The one thing that this disease has taught us is that you can’t get stuck in a rut and think there is plenty of time to take care of things, travel, see family or friends and most importantly let someone know you love them and appreciate them. I look back over this past year and regret the time wasted. I mean the arguments that solved nothing, the wasted energy in being mad or anxious, and putting things off b/c I just did not feel like getting out. In my family, two of my siblings lost their spouses suddenly. They did not get to say the things that needed to be said. I am not going to let that be us. And you should not let it be you. It is so true that tomorrow is not guaranteed. In our case it was a diagnosis of Alpha Lima Sierra that reminded us our time is limited. We are not going to waste it on staying mad over petty issues or trying to prove the other is in the wrong. We no longer have time or energy to waste on the BS we make up in our minds or blow out of proportion. So to all of our family and friends, know we love you dearly.
My loves update: His hands are still getting weak and his legs are still getting tired. We are trying multiple supplements with most of them having neuro-protective properties. We are looking at changing our eating style. Removing as much MSG as we can. The one drug that is given for this disease is a glutamate inhibitor and well what does the G stand for in MSG…Glutamate. We were also given the book Grain Brain (thank you OCG) which has given us food for thought. Along with all this, we are looking at reducing the stress in our lives. Kinda hard when you are facing the S*@! we are but we are trying. It means trying to laugh more and just letting go of the small stuff (as much as we can anyway and with a little help from our friend xanex).
We also continue to place our needs in the Lord’s hands. We continue to ask for healing of the body. We ask that a cure or management for this horrific disease is found. We know He has us and ultimately that is what will see us through.
Now off to give my love his nightly massage.
Love to you all!