How long?

Working through the grief journey is hard and at times exhausting. There are also the parts of the grief journey that you have to sit, be mindful and try to understand the “why” behind feelings you are having. So many things I have learned while on this journey, mostly things about myself. Like, I am stronger than I feel most days because after all, here it is, two years since Tom died and I am still standing. I have also learned how to tune in to the “big feels”. To dissect them in a way that helps me to understand why I do what I do. For example, when I am in my feels, I shut down. I find it impossible to do anything but binge watch some show on television. I don’t have energy to even respond to text messages or emails. I can get consumed by feelings and don’t want to engage with anyone. Sometimes it takes me several days and possible a week or so to recognize the spiral down, and sometimes, it just takes a moment to recognize what is happening to me.

This morning I woke up and laid in bed trying to figure out what is going on with me. It hit me as I pondered why I was a useless person this weekend…tomorrow is July 30th.

Picture taken a few months after we married.

July 30th is…scratch that…was our wedding anniversary. In fact, if Tom was alive, this would be our 34th wedding anniversary but sadly we were only married 32 years. I say “only” because we were supposed to be married forever. But the reality is that I am no longer married. However, the tradition surrounding our wedding has lived on, but I have been wondering all day if I should continue it. See, Tom and I eloped on the island of Guam. We went to the JP, no wedding dress, no pictures, really nothing except our dinner that night. We went to the NCO Club on Base and it was so late they only had one choice for dinner. That was steak, potatoe, salad and cheesecake. So that meal we made into a tradition. Having it every year. Even when Tom could no longer eat, we grilled the steak, baked the potato, made the salad and blended it so it could be given through his PEG tube. Last year we had the same meal, but it just wasn’t the same. This morning I went to the store to buy that meal but today it didn’t bring me joy or happiness. It was sad to buy this meal. This special meal that Tom and I would eat and remember that day, July 30, 1990. Before I went into the store I was talking with Grant and asked him, how long do you continue a tradition like this? His response, for as long as I need to. I feel like I need to but maybe changing it up just a bit.

During the ALS years we chose to do transitional Christmas traditions. It worked to help us ease into a Christmas without Tom. Now it seems like that is the answer to my question regarding the anniversary tradition. Keep parts, change parts and make it more of a transitional anniversary tradition. For me, it is incredibly hard to maintain traditions Tom and I created. It is hard on my heart, my soul and my mental health. Let’s be honest, if I think about what might have been, it’s all hard!

This is just another part of the grief journey.

All my love,

Lara

In the Kitchen, there was love

The quote I wanted to use but it just didn’t seem right is, The Kitchen is the heart of the home. In every home I have lived in from my childhood home to my current and every one in between, what a true statement. Today, my kitchen, what was once the heart of my home will begin a transformation. While not a full re-model, the kitchen is getting a facelift. Something that is needed now that the rest of the home has been taken from fully handicap friendly to one that is not. While, I kept components of the some of the changes we did to the home, you could say the house is now more perfectly suited for “aging in place” rather than one for someone that was wheelchair friendly. The kitchen now looks out of place with the changes to the rest of the home, which is why the facelift.

Like so many times before, I have overestimated how I would handle things. The excitement of the changes and anticipation of having the house feel calm and peaceful has not allowed me to think about what changing the kitchen truly means to me. That is until about 3:30 a.m. this morning. I tease that Captain Cortisol wakes me around 3-4 am many mornings, but this morning I think it had more to do with being anxious about the start of demolition. As I walked into the kitchen so very early this morning to grab a drink of water, I stood in the mostly empty, packed up kitchen and felt the waves of memories hit me.

We moved in to our home in 2008. Our neighborhood was very small at the time, maybe a dozen or so homes. There were families with kids around Trey’s age and so we began a new season of our lives together. Tom was working and moving through the ranks of TDCJ, I was consulting part-time and being the stay-at-home mom I wanted to be. There were school activities, after-school activities, weekend Bar-B-Q’s and outdoor movie nights. All of which started in the kitchen.

That’s where Tom and I hung out and planned our week. It’s where impromptu outdoor movie nights were decided. The kitchen table is where we helped Trey with homework or where Tom and I would just sit and talk after dinner while Trey was in his room playing legos. The kitchen is where Tom would sneak up behind me and give me big, amazing hugs or a kiss on the neck as I made dinner. The kitchen sink is where I would slap Tom’s butt as he did the dishes, you know, to give him a taste of his own medicine. The kitchen has kept secrets, heard laughter and felt the tears of hard times. The kitchen was witness to fellowship with friends and the love between two people. It was where Tom and I taught Trey how to cook and just off the kitchen in the backyard, Tom taught Trey how to grill. Tom and I were always a team, and the kitchen let us trade who was captain of the team. On weekends, he was, it was the grill master’s domain and I was the sous-chef. On the weekdays, I was the master of the kitchen and Tom was my sous-chef.

It was in the corner of the kitchen in January 2016, while Trey was being tutored in Math in our dining room, that Tom grabbed me , pulled me close and told me in a whisper about his appointment to the neurologist he had that afternoon. He told me, how the Doctor believed his left hand weakness was probably not carpal tunnel syndrome that it could be a something else. On that night, in a whisper, that corner of the kitchen was the beginning of our ALS journey.

The kitchen was where we learned to cook differently to accommodate Tom’s changing needs. It’s where I would make batches of different meals, blend and freeze them so we could use them with Tom’s feeding tube. It was the kitchen that instead of fellowship with friends, it was where nurses and caregivers went for Tom’s medication. It was that same corner of the kitchen that I would stand and cry as the disease progressed and it was in that kitchen, I stood alone after my husband died in shock and the heaviest of grief as I realized, he was gone. The love and laughter that once flowed in the kithen was replaced with anxiety, fear and lots of crying. The kitchen was just another room in the house.

The changes to the kitchen are cosmetic and I know they can’t erase the memories, but this morning, it was all I could do to not have that fear along with the emotions the memories stirred in me. Since Tom’s death, I have tried to find my way back to cooking and re-creating the heart of our home. It’s just not the same right now. I don’t really find the joy in cooking like I once did. I am working on that. Actually, tonight I am off to a Thai cooking class with my bestie. Maybe this will spark something in me. My hopes are that the updated kitchen will do the same. Help me find my way back to enjoying creating happy memories, like laughing and dancing, fellowship with friends and ultimately bringing the kitchen back to the heart of the home.

All my love,

Lara