A little puppy love

As the morning is starting, the dogs are ruff-housing on the floor and on my bed. The play seemed to change when the wrestling shifted to the Big He’s bed. Lou the service dog called a time out to get some one on one time with the Big He. Not to be left out, Remi also got herself some Big He cuddles.

Lou and the Big He
Remi and the Big He

Happy National Puppy Day

All my love,

The She

Making Memories With a BANG!

A few weeks ago we did a summer vacay. Not the one that was originally planned which was to go to Las Vegas. Vegas was actually going to be the Spring Break make-up trip that was put on hold due to the Big He’s need for a trach earlier this year. I had planned for us to go to a gun range in Vegas that had really cool military stuff to shoot and drive. It was going to be one of those things the Big He could share with the Little He. Let the Little He shoot the same guns his dad used while in the Air Force. We didn’t do Vegas because we were just not ready to fly and do that extensive travel as a disabled family. Big He and Little He were up for it…bottom line I was scared. So, instead of scrapping a trip all together, I found a place just outside of San Antonio that could let my men experience some good clean fun at the shooting range as well as have things for me and the Big He’s caregiver to enjoy.

Where did we go? Ox Hunting Ranch in Ulvade, Texas. This is also the site for DRIVETANKS.com. We spent three days and two nights on the ranch and while it was HOT, we had a great time…well mostly had a great time. Now days in order to travel I have had to step up my logistics game. Prior to our arrival we had to connect with the local ALS Association to get their help with DME that we could use while at the ranch. Additionally, I had to coordinate with the ranch to see if cabins cold accommodate the added DME. Of course all worked out. The equipment we needed was delivered and the ranch had the room set up to accommodate the Big He’s needs.

When we left Cedar Park, we ended up taking the scenic route which of course took a tad bit longer then the more direct route. You know what, I am glad we did. As I drove to Uvalde, I thought over and over about how I wish we would have spent more time taking the scenic route during our lives then the more direct route. While the end points are the same, one path is easy, straightforward and is not much to remember while the other may have more twists and turns,more enjoyable and gives you many more memories.

I won’t lie, the three day’s had their up’s and down’s but overall a good time was had by all. It was our first trip since all the…I don’t even know what to call it…all the hardship of the first part of the year. The highlight for the trip was to take place at DRIVETANKS.COM. We had arranged for the Little He to not only shoot the same weapons his Dad did while in the military but to drive a tank. Part of the day also included having one of the Big He’s Air Force Brothers show up to be the surrogate Dad we needed to participate in the events. This is not my wheelhouse and just not my thing but I wanted the men in my life to enjoy the day which is why Brother Billy was called to help out. As always, he was there when we asked with not only a camera to capture the day but also venison sausage for us to take home.

The DRIVETANKS folks were A-MAZING. I knew that my Little He was in good hands and was safe and shown proper gun safety during this adventure. We found out all the guys were Veterans as well and they made the day very special for our boy. They get it. They understood the significance of this trip. I know we just met the men but it is like with everyone we meet that have served…instant connection and instant family. Doesn’t matter which Branch or when you served, there is a connection that you just don’t understand unless you are part of this Band of Brothers I don’t ever really get it as I am on the periphery as a wife…also known as ‘the dependa’. The Big He and I married just 10 months after he joined the Air Force so I have been watching and experiencing this for a long time.

I also can’t talk about the trip without talking about the incredible place that the Ranch is. The animals all around were incredible and so beautiful. The people from guest services, our guide Matt, Entertainment Director Chelsea, and the rest of the staff were so accommodating and helpful. They truly want you to enjoy yourself and enjoy the beauty that is Ox Hunting Ranch. We stayed in a cabin on a little lake. The animals are free to roam throughout the cabin area so watching them get so close was incredible. The quiet that surrounds you at night is so relaxing. The Little He and I were able to just sit outside at night and spend some quality time together. We even did a little stargazing using an app on my phone.

I am glad we went. I am so grateful for all the people that helped us make this trip. Amanda the Big He’s caregiver was also a very instrumental part of this trip. She helped to make it possible. She made sure all the equipment was packed, she sat with the Big He in the back of the van to help as needed and worked to get the Big He settled each night and up each morning with his routines so I could spend some time with the Little He.

Amazing adventure. Memories made to last a lifetime.

All my love,

The She.

Paralyzed. Trached. Now what?

Most everyone knows by now that the first part of 2019 SUCKED for our family. The Big He had a cold in January which started us off to a really crappy new year. All said and done over 40 days spent in ICU.

The insult to his body after all of this was an increase in the progression of this cruel disease. Where prior to the cold he could stand and transfer on his own, he no longer can. He was able to use his left hand and arm and now he is paralyzed. He was eating and drinking and now he is fed through a tube in his stomach. The fear of how the Big He would adjust was like a thick cloud in the house. He was quick to anger and wanted to do nothing but lay in bed. It was almost 2 weeks after he got home that he had the motivation and energy to get out of bed. Since then he is now out of bed several times a day, gets in his wheelchair and we have even made it out of the house.

But now what?

Well, let me tell you. The Big He has been learning and playing with new software on his surface pro with eye-gaze technology. He is learning Photoshop and Light Room. He is taking all the pictures from our post diagnosis bucket list trips and playing with them more.

All of this to say, I am totally going to brag on my amazing husband. He has pulled himself through the muck of pneumonia, trach surgery and sepsis and is finding his happy (besides the Little He and I) which is Photography.

He has always loved photography but with work, family and the million things that need to be done he never was able to find the time. That is until the diagnosis. He got himself a new camera and we began our Bucket List adventures. Our adventures have taken us to Washington DC, Bora Bora, Tahiti, Hawaii, Colorado, New Mexico and of course all over Texas. We will be able to use these beautiful pictures as a way to remember.

You can now find some of his photos on Fine Art America.com

These pictures mean more than just a wonderful adventure. They were edited by the Big He using only his eyes. Since he is still getting comfortable using the eye-gaze the time it takes him to work on a photo is lengthy. These photos are the beginning of a new Chapter. He is working with his cousin to get his camera mounted to the wheelchair so he an operate it hands free. We will continue to be able to see the world through the Big He’s eyes which will keep our memories alive forever.

April 2019

All my love,

The She