Let me tell you a little bit about my husband. He is an amazing man. He is strong. He is very smart. He is protective. He is incredibly giving and boy is he incredibly handsome!!! He loves his family and friends and they never doubt or question that love. If you know the Big He, really know him, you know this. Some people may be thinking, “really, he seems like such a smart ass most of the times”. Well he is that too, but just below the smart-ass exterior is a big ole mush monster. This is the incredible man I know and have loved for so many years. I have watched as he has run to family/friends/neighbors at a moments notice. He is there before they even knew they needed help. He has even been known to run into a neighbor’s burning house to help put out a gas fire. He never think twice about helping someone in need. Even now, facing his own terminal disease, he thinks of others before himself.
So why is it so difficult for him, for me, for our family to ask for help? I am not sure why this is? But it is. While we are doing the best with what we have been dealt, sometimes it just is not enough. We are trying so hard to live and make the memories we know we will need to see us through the tough times, but we must also deal with the other consequences of this disease. For us, right now it is finding the money to get the Big He retired. Everything seems to be happening so fast and I have found myself now realizing this is something we cannot do alone. We do need help and we have had friends and family ask what they can do. At this time, we need help with getting the Big He retired. So, I have set up a giveforward page to help us with that goal. Below is a link to that page.
Thank you in advance for your prayers and help during this difficult time.
All my love,
His update: Things are definitely progressing. We picked up his wheelchair on Friday. Very difficult I have to say. I know for him, but for me as well. We know what this means, it means this disease is not slowing. We know that he will need that chair because the disease is robbing him of his ability to walk. He gets very tired very easily now. He is seeing some decline in his breathing, he cannot cough as hard as he use to. He gets short of breath by doing such simple tasks. Last night I got to watch the concern and fear in my son’s eyes as his daddy had a little choking episode. The fear we all have about this disease is overwhelming. Can I just say, I hate this horrid disease. I hate what it is doing to the love of my life, to our family. It is so hard to wrap our mind around the fact that this disease has been around for such a long time yet there is NO cure. It is hard to wrap my mind around the fact that my handsome, strong and loving husband has this awful disease.